About hae hk

The Hong Kong HAE Patient Group (“hae hk”) has been formed in 2019 to support patients with hereditary angioedema (“HAE”) and their families to create awareness, provide education, and gain access to modern treatments so that HAE patients can enjoy a higher quality of life.

遺傳性血管性水腫病人組織 (香港) 有限公司 (“hae hk”) 成立於2019年,旨在支援遺傳性血管性水腫(“HAE”) 病人及其家人,以提高認識,提供教育,探索現代治療,以便HAE病人能夠享受更高的生活質素。

HAE is a very rare genetic and potentially life-threatening disease that occurs in about 1 in 50,000 people. It is caused by C1 esterase inhibitor deficiencies in the body.

HAE是一種可以危害生命的罕有遺傳疾病,約在50,000人中便有一個個案。 它是由體內C1酯酶抑制蛋白缺乏或功能異常引致的。

HAE symptoms include episodes of edema (swelling) in various body parts including the hands, feet, face and airway. In some cases, abdominal pain, nausea, and vomiting can result by swelling in the intestinal wall.

HAE症狀包括身體各種部位(包括手,腳,面部和氣道)的水腫(腫脹)發作。 在某些情況下,腸壁腫脹會導致腹痛,噁心和嘔吐, 情況可持續數天。

Airway swelling is particularly dangerous and can lead to death by asphyxiation.


Unfortunately, there are currently no registered medications for HAE in Hong Kong. Patients needing treatment for life threatening attacks need individual registration of drugs on a “named patient basis”. That is why it is important that patients be diagnosed and registered so that medication is available for use when needed. Known anti-allergy treatments are not effective in treating HAE attacks.


hae hk aims to achieve optimal standards of care and treatment for all people affected by HAE living in Hong Kong so that they too can live a fulfilled and higher quality of life.

hae hk的目標是為所有受HAE影響的人士提供最佳的護理和適當治療資訊,使他們能擁有更充實及高質的生活。

If you wish to know more about hae hk, or wish to join our patient support group as a member, please contact us at hkhaepatientgroup@gmail.com.

如果您想了解更多關於hae hk的信息,或希望加入我們的患者支援小組,請通過hkhaepatientgroup@gmail.com與我們聯繫

Become a Member


We cordially invite you to join the Hong Kong HAE Patient Group (“hae hk”) Membership Database. As a member of hae hk, you will be part of a local community of HAE patients, and gain access to resources about HAE and be eligible to participate in patients/doctors support groups and events and activities organized by hae hk and other patient support groups. You can join hae hk’s membership by completing and signing this Membership Form.

你填寫的所有資料都會保密。 * 項目必須填寫

Your information will be held in strict confidentiality. * denotes mandatory fields

Member benefits 會員權利

  • Connect with others/ 與其他人保持聯繫

  • Support and advice/ 支持和建議

  • Access the latest information and news/ 獲取最新信息和資訊

  • Invitations to events and seminars / 邀請參加活動和研討會

Contact Us / 聯絡我們

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